Guess who's 1!

XAN!

Yup, he's one years old now and becoming such a little man!

Alene came up with the great idea of a gumball machine because he enjoys picking up objects and putting them inside various containers (including an actual toy gumball machine Camden got for Christmas a while back). It made for a fun cake to share and a great cake for Xan to have himself (an entire cake for your kid at his 1-year-old b-day is a Duersch tradition).

Alene did a fabulous job with the cakes, and left me the project of making a mini-edible-gumball machine. I whipped up some rice krispie treats and sculpted it over top of a balloon, let it harden, popped the balloon and pulled it out. Putting it together, it actually allowed Trix to drop down through the top and out the bottom. Fun project, and Xan enjoyed dropping the Trix we gave him into the top!

It took him a while to warm up to the idea that he could eat the thing in front of him, but once he figured that out, he had fun! We had lots of family and friends come to celebrate with us - thanks for coming! We really appreciate all the support we've had with all the treatment Xan has had to go through. His club feet are hugely improved, and very functional!

Xan is really taking to his standing and scooting now-a-days. He's been doing it for a few months now. There's definitely a mental block keeping him from trying to take steps on his own, but, just recently, he's gained a fascination with pushing around or climbing on all the wheeled objects we have around the house.

Mohawk Xan!

Update on the boys

Well, since that includes me, I'll make it brief on my end... I'm graduating/walking for my graduation on Thursday and Friday :-D. Masters in Computer Science, wahoo!

Camden...

Has some new favorite toys...

He rides his tricycle everywhere and loves to build train tracks with his train set from IKEA. Thomas and McQueen are still his top two favorite toys though.

The doctor said it was time, so it was time - Camden has gone binky-less. We cut the rubber end of all his pacifiers and told him they were broken. He was pretty heartbroken. He stopped asking for them almost immediately though (success!), but without a binky to help him fall asleep for naps or when he'd wake up at night it was a rough week of transition.

Xan...

After wearing a cast for 3 weeks following his surgery Xan graduated from casts and was fitted for the "dobbs" bar and boots system. We took pictures of all the casts (minus at least 3 we weren't able to grab) as a memento.

So, as you can tell, Xan is ok with his boots at various points in the day, and can be his normal happy self. Unfortunately, it's really hard to see him in pain - which he is very obviously in pain for much of the day. Here's why... Fresh out of the cast, his incision from the surgery still wasn't quite healed:

The boots have to be put on tight (very tight), otherwise in all the baby's movements, he'll get blisters. We followed orders to the T even though it meant a lot of hard work and enduring the crying and struggling each time we put the boots on. Sadly the result was still a blood blister (likely due to the amount of pressure put onto the heel) right around the incision:

Which eventually opened up:

And after opening up and draining out, rather than healing, things got a bit worse. Over the weekend the blister area started to discolor and form puss. We thought the blister had become infected despite the neosporin we faithfully applied.

However, when Alene took him in to the doctor today it was diagnosed as a pressure ulcer. Unfortunately an ulcer like this is not treatable by antibiotics - which would have been tame compared to the treatment he will likely have to go through.... debridement. Debridement is where they'll scrape off the dieing tissue and clean the wound. Not fun.

We've been referred to the wound clinic at Primary Children's to get that done after getting a second look at the wound by our Surgeon Dr. Stotts. For the meantime, Dr. Stotts is letting us keep Xan out of the braces to relieve the pressure. We're just hoping we don't lose too much progress and that Xan's wound will heal swiftly.

Our poor little Xan... It's tough to see him have so much pain as such a little guy. A sweet, happy little guy - like he is - doesn't deserve this kind of trial. Probably for that very reason, he is able to endure it so well.

Kelv loves Leo.

Oh wait... I might have stated the direction of that affection backwards...

Can you spot the cat? How did he get up there?

He's also been spotted sitting on top of our closet doors!

That cat has some serious hops!

Keep your eye out for a couple posts to come... Camden's Tumbling Tots and Xan's New Braces!(The later future post has resulted in an incredibly difficult week. Hence why it's not up yet.)

Leo

I am not a cat person.

Well, I guess I could be if have to be :-P

I knew we'd get one eventually, but it all came sooner and faster than I ever expected it to. Alene's been talking about wanting one for quite sometime now. The event that really pushed the initial domino over happened on a rainy Wednesday night.

Alene and I were home, the boys were in bed and we were getting ready to watch a movie. Before we picked out the movie, we heard a crying sound outside. Opening the door, only a crack, I could see the inevitable fate of owning a cat even more imminent, real, and knocking at my door.

With a bit of investigation, we found the owners of this tag-less feline (in our ward) and I gladly returned him to his owner. Alene enjoyed the hour of cat we had that night. I thought I'd have some time before a mischievous cat joined our family, but, alas, the dominoes had begun to fall...

I thought our tight finances would save me from having to give in to the pleas of my wife. However, a few days later, we mapped out the costs of getting and owning a cat. A bit of up front cost - but fairly manageable with some of the options we found online (cats that had vaccinations already completed, etc). Monthly costs would be very do-able (less than $10/month).

In the process, Alene found a cat, a litter box, and a bed on ksl.com all for incredible deals. We set out on Friday last week to round up all the supplies and the kitty himself. Seeing "1 year old cat" on the description made us think we'd get a small, fun little kitten. However, getting there, we immediately realized he must be on the latter end of 1 year old. He's a loooong and skinny kitty. A beautiful cat with a kind and loving personality.

Without further ado: Leo!

At the shelter, Camden was much more excited about all the puppies, but fortunately did share some of his excitement with Leo ("Jingles" at the time).

Leo was a bit skiddish from the get go...

He was even more skiddish and terrified of Camden when we got home. He literally spent about 98% of his first 24 hours in our home hiding under either our bathroom vanity or bed.

Screeching, squealing and screaming aside, Camden did very well with Leo, he was very soft and sweet to the new kitty (he's using the brush to pet him in this one).

Although Leo hasn't warmed up to an over-excited Camden yet (he hides and sleeps while our kids are awake), he has definitely grown to like Alene and I - and has begun to show more of his playful nature :-D. He spent most of last night running around exploring the house and jumping on the bed to nuzzle our faces as we slept.

Saturday night when he finally ventured out from his refuge (our bed) of his own accord, we were so pleased with the new development that we took the following video (shortened for your convenience):

Surgery

So Xan had his surgery today at Primary Children's. They clipped his Achilles Tendon again (tendonotomy) and also opened up his ankle joint capsule to try and get his foot up to a normal position vertically. My mom was so wonderful and came up to Primary's with me since Kelv had to work. It was so nice to have her support especially recognizing the sacrifice of time she was making! (She works for an accountant and we're thick in tax season!)

The surgery went REALLY well except for the fact that they couldn't pull the skin closed around his incision because of how vertically they pulled the foot. They stitched the incision closed as close as they could and and then we'll go back in next week and try and suture it all the way closed after giving the skin a week to stretch and heel. We unfortunately (and fortunately for the pain aspect) have to put him under again for the procedure which means the whole surgery process again. I'm just hopeful that since it will be a much faster procedure, recovery will also be much faster.

Xan had a pretty hard time recovering from the surgery. No one likes what anesthesia does to your body. It took about an hour of snuggle time before Xan was ready to try and eat, but he held it down great once we were able to get going.

He's had a rough day, but the liquid lortab, Baby Einsteins, and Mommy near by has seemed to help. We so appreciate all your prayers, thoughts, and fasts for Xan. Thank you!

And overall, we are so happy with how things are turning out and love our little boy so much! Here's a picture of Camden showing how happy we are!

And just as a quick side note and excuse to post this adorable picture...we also bought ANOTHER stroller this week (we now have 6!) We realized that we can't fit any of our current double strollers in our trunk if we need to also take luggage (aka. trips to Boise) so we got a compact unbrella stroller. This will be great for the trips!

Vote for Xan!

Help Xan win! This photo of Xan was chosen in the runnings for cutest kid of the week! Will you help us win by voting everyday for Xan? Voting ends on the 13th. And feel free to have friends vote too! Thanks all!

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Pics & Surgery Update

Camden turned 2 on February 18th. Much to Alene's chagrin, she planned a spectacular birthday for him - which still turned out to be awesome for him - but, unfortunately, Camden acted very age appropriate on that day (if you catch my drift...). Camden got a pre-celebration on Sunday with the Duersch family, hence the cool cupcakes. Then, on Friday, we had a surprise celebration with the marshmallow fondant cake fully equipped with Lightening McQueen, Doc and Willey's Butte.

Xan is a way cute kiddo and puts up with his older brother quite well. He's an amazingly chill baby - such a blessing! Casting has been pronounced insufficient for correcting Xan's extremely resistant club foot yet again by our second doctor, Dr. Stotts. The surgery is scheduled for Wednesday (3/9). During the surgery, he'll be completely sedated, his Achilles tendon will be severed and the ankle joint will be opened up to allow maximum stretching and movement towards the slightly over-corrected position the doctor will be aiming for. Afterward, it will be one 3-week cast, 2-3 months of 23/7 boots-on-a-bar, and then 2-3 year of nap/night time boots-on-a-bar. If all goes well, his foot should be fully functional and capable for nearly anything Xan can set his sights on. The only slight side effects, should only include things like smaller muscle development on the left leg, and the entire left foot being at least a shoe size or two smaller than the right foot. We're hopeful things will turn out just fine, but things have been slower and more complicated than originally thought, so any prayers and thoughts (especially this Fast Sunday with the surgery coming on Wednesday) would be appreciated.

Thanks all!

Happy Valentine's Day!

The promised update

Alene asked me to post a little update since we have had such an outpouring of love and concern for little Xan. So here you go!

We went in to see Dr. Stotts at Primary's on Monday this week. After looking at his foot for a long while, and rubbing his own chin for even longer, he came to the decision that he wanted to give Xan’s foot a break from casts for a short time. Xan’s skin has become so sensitive, discolored, and bruised in certain places that he feels it needs a break and a chance to become healthy again.

Here's Xan's foot at our Primary Children's appointment on Monday Jan. 31, 2011

Here are 2 pictures of Xan's foot the week before and 1 week after the tendon release on Jan. 25 when Dr. Faux decided to refer him to Dr. Stott. You can really see the creases in his foot here.

Two weeks from now we’ll have a casting appointment with Dr. Stotts. A few weeks – and a few casts – after that, he expects the foot to be in a correct enough position for a more invasive surgery. Fortunately it’s not what they used to do, back in the day, where they opened up the entire foot to rearrange things, but they will open up the back of his heel/leg so that they can cut the achilles tendon along with many more surrounding tissues that have too much tension. After that, it will be another few weeks in a cast to allow it to heal in a good position. Then if all looks good we'll move onto braces. Yay!

It’s not fun to see Xan going through so much more than a typical club foot correction process, but we’re still optimistic, and Xan is being a patient/brave little guy!

Thank you to every one for all the support and prayers. We appreciate it so much.

Surgery?

Over the last 4.5 months we have had at least one doctors appointment every week. Initially they were my pregnancy appointments as we neared Xan's due date; after Xan was born however, most have been related to Xan's club feet treatment.

Xan needed only 3 casts to advance his right foot to a state acceptable enough to prepare for the braces. His left foot has been an adventure though (18 casts and counting)! Progressively for the last couple months, although we've been able to rotate his ankle more and more, the foot itself has looked progressively more deformed. Every time we'd take off a cast I'd just look at his foot and it made me sad. It was getting more and more weird creases and looked painful. It seems so incongruent with the sweet, joyful spirit of our little boy. It's been sort of an eye opener about how people who live with disability everyday can be stereotyped.

So, today was another one of those casting doctors appointments and it was a bit discouraging. Since Xan underwent a tendon release procedure last week, (where they cut his Achilles tendon and recast his foot in the normal position so the tendon heals appropriately and not so tight,) we were hoping for some pretty good progress. Last week they weren't quite able to elevate his foot to a normal position, so they decided to try and adjust it again this week before the healing was 100% complete. Well, when they took the cast off today the foot looked just as deformed and our doctor said he'd even lost progress. They took some x-rays as you can see below. It's fascinating to see how much work that poor little left foot needs as the bones alignment is incredibly off.

(Click on the pictures to enlarge. Then you can zoom in on his left foot to see the bone structure.)

Our doctor (Dr. Faux) whom we really like, is an incredible adult orthopedic surgeon but recognizes that pediatrics is not his specialty. After seeing the x-rays Dr. Faux is convinced Xan needs surgery since his foot is so resistive. Consequently, he has now referred us to a Dr. Alan Stott up at Primary Children's for a second look and as someone who can hopefully reconstruct Xan's foot. We'll head up early Monday morning and I'll try to keep you updated in a timely manner of what steps we will take next.

I am so grateful for so many things at this point. First, I'm so glad we live close enough to a facility that specializes in children's surgeries and club feet. I'm so happy our original doctor was humble enough to realize a procedure may be out of his scope rather than try to save face and possibly end up doing something that maybe wouldn't be the best thing for Xan. And mostly, I'm just grateful that God sent us this beautiful, sweet little boy who has handled all of these challenges better than I ever would have imagined he could. We love his smiles, his coos, and his excitement for life. We feel so blessed to be his parents and appreciate so many of your prayers and concerns on our behalf. Thank you!